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Nick Jones

Health.....

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And all after robotic surgery, supposed to minimize complications.   Very bad luck, Nick, as "minimise" does not mean "no" just fewer, and you drew the Queen of Spades.

Glad the recovery is on an upward tilt, however long the climb.

Best wishes,

John

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Thanks John.  It all stems from one problem - bleeding early in the post-op period, which was not recognised and dealt with.  I know that a DVT is a bad thing too, but persisting in giving anti-coagulant to a patient who's just had surgery in a rather vascular area (where cautery is avoided to minimise nerve damage) and is still actively bleeding.......  The patient was pointing this out too.   Nothing about blood loss on discharge notes either and I'd have thought Hb 150ish down to 106 ought to have been worthy of mention?

I gather that one complication greatly increases the risk of further complications, especially when it occurs early on.

Bleeding aside, the surgery method has lived up to one promise so far (no nappies needed!).  Bit early to say on the other two main criteria!

Nick

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Senior Management has the week off and both kids are away. We were also hoping to go away for a few days as yesterday was our 25th wedding anniversary (makes me feel old!).

Going away seemed a bit ambitious, but we have been managing to get out to local National Trust and similar gardens. Still can't walk very far but getting better.

Best bit? Been driving the Vitesse........ it's actually the most comfortable (for me) vehicle we own seating wise, even if the ride quality is a bit abrupt!

Monday's trial was a special blood test at Taunton hospital. No big deal for me, what's another hole in arm, except I had to take myself. Meant driving 20 miles and a fairly long walk. There is a car park on the hospital site, but I'd rather crawl than pay their bandit prices, and anyway it's on the wrong side of the site so not saving much shoe leather..........

Made it, without major drama, didn't even get lost on the way in. This hospital is on a large site and is a real mish-mash of old (WW2!) and new haphazardly joined by a maze of corridors. Then had to wait an hour because although they knew I was coming, no one had done the paperwork and it has to be signed by the consultant, who had to be tracked down. The seats were bloody uncomfortable........ However, as ever a sobering and humbling experience as I was in the waiting area a of the Macmillan.  Most people coming for blood tests to see how their chemo is doing. Many hats and scarves even though it was 24 degrees....... Then, when they finally took my blood, the lab lady herself came in person to collect it and provided the comparative sample from her own arm! There's dedication!

Was a bloody long walk back to the car, not helped by dodgy signage - you could wander the corridors for hours without finding a way out! Beat the parking warden though!

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Hello Nick

                  How about a pair of roller boots? (The engine powered type!)

Roger

Ps its making my eyes water at the thought of it all! You have been dealt a rough hand this time but as the Memsahib says it's better than the alternative 

Still progress Vitesse?

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Hi Nick, glad you managed to get out in the Vitesse. My fingers are crossed that things will improve for you drastically very soon.

Good luck.

Kev.

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Thanks all, definitely on the up now.  I can almost pretend to be normal for a few hours a day!  Have even been to a couple of social engagements!

Driving the Vitesse has been a big boost - though it badly needs a wash as very dusty and it just won't blow away, even at speed.....(I tried!).  Mind you, the A6 has been mostly parked under a tree for the last 8 weeks and looks abandoned...... even though it has been used from time to time.  Her ladyship's TT is so uncomfortable even the lure of working AC is not enough!

Nick

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Saw the surgeon today.  Cancer wise the news is good.  As far as they can tell there is no disease outside the tissue that was removed and the actual tumour was quite small and relatively unaggressive. PSA now basically undetectable, but will be monitored closely. 95% chance of going 10 years without recurrence, which is about as good as it gets.

He also spent some time explaining what had gone wrong post op and how it leads to the issues I've had - which was welcome.  Could have done with the info about 8 weeks ago really, but anyway........  He is sure it will fully resolve without further intervention, and without long-term harm, though is a little vague about how long that might take.......

It is improving though and the rate of improvement seems to be accelerating too, which is very welcome.  Surprising how a big a psychological lift having normal colour wee gives.  Sorry if TMI but when one's wee has varied between tomato juice and rose wine, sometimes both in the same session, for the last 8 weeks, one develops a morbid fascination!  Today, as part of the surgeon visit I drove about 80 miles, walked all round a National Trust garden, had a pub lunch, then saw the surgeon.  Senior Management drove home as I was a bit ragged by then, but an unimaginable level of activity compared to even a week ago.

In other news, I drove the Vitesse so much last week I got a screw in a rear tyre causing a puncture.  Happily it was graceful enough to go flat at home.  Chris got a puncture repair lesson.......  Oh, and the clutch master cylinder is leaking...... it's been fitted about a year.  Bah!  I wonder if it's a close enough copy of the Girling to take a Girling seal kit?

Nick

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Hello Nick

                   That is exellent news (we need your expertise!)

I always judge my state of health by my p**s and how strong it smells how else can you judge?(vino does affect it if enough water is not taken!)

Been doing a dry run for local TSSC group today only 200 miles!(will they last?)

Whats on offer

Roger

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Gosh, Nick!   It's been that coloured for that long!    I've noticed - they put them up right in front of you at the urinal - the posters encouraging you to see your doctor if you see blood in your urine "even just a bit"!     Your symptoms must have been so worrying!

I had 'just a bit' last year, and needed no poster to take me to my GP - it terrified me!    Led to the most uncomfortable investigation I've ever had, a CT of my urinary tract.    Had to drink TWO LITRES of water, then lie in the machine, first on my back then front.  With a very, very full bladder that last was not pleasant!

They found some tiny stones in my kidney, one of which probably passed and caused a tiny bleed, so nothing needed doing.   Phew!

John

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On 8/19/2018 at 10:46 AM, JohnD said:

Led to the most uncomfortable investigation I've ever had, a CT of my urinary tract. 

Good to hear it was nothing serious John.  Though a kidney stone can certainly feel serious I understand.

Yeah...... had a cystogram a few weeks back where they filled my bladder to somewhat beyond the comfort point (!) with contrast media via my suprapubic catheter and then suggested (with a slightly evil grin) that I try not to wet myself (or their table) while they did their scan.  The scan was quite brief but the consultation that followed (by phone, with my surgeon who was elsewhere) less so.  when the radiologist wandered back in I was force to enquire (maybe a little plaintively) whether he'd finished and if so would he like to empty me before I emptied myself.......  He had the good grace to look slightly abashed and got right on with it.  I was grateful.

Remember something similar years ago with an ultrasound where I had to fill myself as you did, wait much longer than the advertised time and then endure someone leaning on my bladder (which felt like it was up to my rib cage) with the US probe for 5 mins....... lucky the loo was close by!!

Template biopsy of the prostate isn't a great experience either.  Can safely say I won't be having another of those though.  Small mercies.....

Bloody sadists these medics....... except the anaesthetists of course!

Back at work last week for mornings (quite long mornings it felt like) and lasted until 4pm today.  Still can't walk all that far before things get sore so desperate for some exercise (the weight I lost in muscle is going back on as fat around my middle!) I've been lane swimming for the first time in decades. 40 lengths (1000m) on Friday morning and 50 lengths on Sunday morning.  I ache a bit.... but mostly muscles I'd forgotten existed rather than the surgery affected areas.

GT6 lost a bit of weight too.....

Nick

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Swam 72 lengths on Friday.  Upset my super-fit cyclist younger son by being able to go faster and further than him.  In cycling speak I "dropped him" then "lapped him" - twice.

Still he did well too - he's certainly never swum a mile before.  He could even walk afterwards, which I was finding challenging!

Only 64 lengths this morning (1 mile) plus some workshop time plus some lawn mowing (first time since early June), so I must be nearly mended, though long periods sitting are still a problem.

Would like to thank you all for your support over the last 3 months - it has been very much appreciated! :smile:

Nick

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